Maine Developmental Disabilities Council Data Evaluation Project

Maine Developmental Disabilities CouncilThe University of Maine Center for Community Inclusion and Disability Studies (CCIDS) has been contracted by the Maine Developmental Disabilities Council (MDDC) to analyze the qualitative and quantitative data from surveys on the healthcare needs and experiences of Maine children and adults with Autism Spectrum Disorders (ASD). The survey was developed and administered by a researcher contracted by the MDDC and the data was gathered from more than 100 extensive structured interviews with parents or guardians of individuals with ASD and adults with ASD.

CCIDS will produce and deliver the results of this analysis in a report suitable for a peer-reviewed publication. Included in the report will be a literature review that builds upon the review conducted for the MDDC by the researcher who developed the survey tool. The report will include a discussion about how the results fit into the larger literature on healthcare disparities for individuals with ASD, and explanation of healthcare disparities based on age or other demographic factors, the areas of greatest concern regarding the healthcare needs of individuals with ASD in Maine, and recommendations for future research.

Accessing Healthcare report coverDownload Accessing Healthcare: The Experience of Individuals with ASD in Maine (108 pg. PDF) report here.

Download the Accessing Healthcare: The Experience of Individuals with ASD in Maine Report Summary (2 pg. PDF) here.

Funding Source

Funding provided through a subcontract with the Maine Developmental Disabilities Council.

Funding Period

June 2013 – November 2013

Project Coordinators

Nancy Cronin
Executive Director
Maine Developmental Disabilities Council
225 Western Avenue, Suite 4
Augusta, ME 04330
1.800.244.3990 (Toll-free)
207.287.8001 (Fax)

Alan Kurtz, Ph.D.
Coordinator of Education and Autism
University of Maine
Center for Community Inclusion & Disability Studies
5717 Corbett Hall, Room 203
Orono, ME 04469-5717
207.581.1231 (Fax)
TTY users call Maine Relay 711