For Individuals and Families

This page contains links to selected resources for people with intellectual and developmental disabilities and their families. The list includes resources from CCIDS, as well as other trusted organizations, about important topics such as advocacy, assistive technology, early childhood, education, employment, guardianship and alternatives to guardianship, health, housing, recreation, respite, siblings, Social Security, spirituality/spiritual supports, and transition.

Advocacy

  • Autism Society of Maine (ASM) – ASM provides education and resources to support the valued lives of individuals on the autism spectrum and their families of both national and Maine resources, and general autism information.
  • Disability Rights Maine – Maine’s Protection & Advocacy agency that works at the state level to protect individuals with developmental disabilities by empowering them and advocating on their behalf.
  • Maine Developmental Disabilities Council – Maine’s federally funded, self-governing organization charged with identifying the most pressing needs of people with developmental disabilities in the state.
  • Maine Parent Federation – MPF provides information, referral, one-on-one telephone support, and training to parents of children with disabilities or special health care needs.
  • Speaking Up for Us of Maine (SUFU): Maine’s self-advocacy network for people with intellectual and developmental disabilities.

Assistive Technology

  • Early Learning and Educational Technology Policy Brief (25 pg. PDF) – Recognizing the growth of technology use in early learning settings, the U.S. Department of Education and U.S. Department of Health and Human Services collaborated in the development of the Early Learning and Educational Technology Policy Brief to promote developmentally appropriate use of technology in homes and early learning settings.
  • Maine CITE – A program of the Maine Department of Education, designed to help make assistive technology more available to Maine children, adults and seniors who need them.
  • Spurwink ALLTECH – Provides assistive technology (AT) assessment, device demonstrations and short-term loans, sale of used AT, training, and consultations.

Disability Statistics

  • The Annual Disability Statistics Compendium gathers the most recent national statistics on people with disabilities from various federal programs and agencies. It provides current statistics and time trends related to the prevalence of disabilities as well as key indicators on employment, health, community living, and other outcomes of importance in monitoring the well-being of individuals with disabilities. Published by the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) at the University of New Hampshire Institute on Disability, with funding from the U.S. Department of Health and Human Services, Administration for Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
  • The Annual Disability Statistics Supplement (307 pg. PDF) is a companion report to the Annual Disability Statistics Compendium. The Supplement presents statistics on the same topics as the Compendium with additional categorizations by demographic characteristics including age, gender and race/ethnicity. Published by the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) at the University of New Hampshire Institute on Disability, with funding from the U.S. Department of Health and Human Services, Administration for Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

Early Childhood

Education

Employment

Guardianship and Alternatives to Guardianship

  • Disability Rights Maine – Maine’s Protection & Advocacy agency that works at the state level to protect individuals with developmental disabilities by empowering them and advocating on their behalf.
  • Maine’s Supported Decision-Making Coalition – Supported Decision-Making is a method of developing decision-making skills by relying on a team of supporters to assist the individual with collecting information, processing information, and coming to an informed decision.
  • “The Right to Make Choices”: The National Resource Center for Supported Decision-Making (PDF) – This article examines the implications of overly broad guardianship and the potential for supported decision-making to address such circumstances. It introduces the National Resource Center for Supported Decision-Making as one means to advance the use of supported decision-making and increase self-determination.

Health

Housing

LGBT Aging and Elders

Recreation

  • Maine Adaptive Sports & Recreation – Organization that promotes year-round education and training for individuals with physical disabilities in order to develop skills and provide enjoyment through active recreation.

Respite

  • Respite for ME – A statewide program to assist families by enabling a much-needed break in the responsibility of caring for a child with significant developmental delays, and behavioral or emotional disorders.

Siblings

Social Security

Spirituality/Spiritual Supports

Transition

Updated: 10/05/2017