For Professionals and Practitioners
This page contains links to selected resources for professionals and practitioners who serve or support people with intellectual and developmental disabilities and their families. The list includes resources from CCIDS, as well as other trusted organizations, about important topics such as accessibility-planning for inclusion, assistive technology, autism, disability etiquette, diversity and inclusion, early childhood, education, employment, health, housing, recreation, spirituality/spiritual supports, and transition.
Accessibility
- Planning Accessible Meetings and Conferences: A Suggested Checklist and Guide (2020) PDF – This accessible checklist, developed in collaboration with people with disabilities, is designed to help any person, group, or organization plan a meeting or conference that is inclusive and welcoming for everyone.
Assistive Technology
- Maine CITE – A program of the Maine Department of Education, designed to help make assistive technology more available to Maine children, adults and seniors who need them.
- Spurwink ALLTECH – Provides assistive technology (AT) assessment, device demonstrations and short-term loans, sale of used AT, training, and consultations.
Autism
- Autism Spectrum Disorders (ASD): State of the States of Services and Supports for People with ASD (PDF) (2014) – A report prepared by L&M Policy Research, LLC, for the Centers for Medicare and Medicaid Services summarizing state services for people with ASD and policies related to people with ASD.
- Interagency Autism Coordinating Committee (IACC) Summary of Advances in Autism Spectrum Disorder Research: Calendar Year 2017 (52 pg. PDF) – The 2017 Summary of Advances provides short, plain language summaries of the top 20 research articles selected by the IACC. The studies selected for 2017 have provided new insight into potential biomarkers to predict risk of autism spectrum disorder (ASD), developmental trajectories of children with ASD, and the impact of the various prenatal exposures on ASD risk. The advances also include studies that investigated treatments and interventions for both ASD and co-occurring conditions, the impact of policy changes on ASD health care spending, patterns of injury mortality, and prevalence differences across demographic groups.
- Interagency Autism Coordinating Committee (IACC) Strategic Plan for Autism Spectrum Disorder Research, 2013 Update – A federal strategic plan for autism spectrum disorder research, produced by the IACC, with input by federal officials, public stakeholders, researchers, adults on the autism spectrum, parents, advocates, and the general public.
- Nancy Lurie Marks Family Foundation – the Foundation develops and provides grants to programs in research, clinical care, policy, advocacy and education. Founded by Nancy Lurie Marks over 25 years ago, the NLM Family Foundation is one of the largest supporters of initiatives in these areas.
- Ohio Center for Autism and Low Incidence (OCALI) – OCALI serves families, educators, and professionals working with students with autism and low-incidence disabilities. Website includes Autism Internet Modules, Transition to Adulthood Guidelines and general information on autism and transitioning.
- Organization for Autism Research (OAR) – OAR’s mission is to apply research to the challenges of autism. Their website provides information tailored to family and friends, providers, and professionals. General autism information, research facts, news and events are also included.
Disability Statistics
- The Annual Disability Statistics Compendium gathers the most recent national statistics on people with disabilities from various federal programs and agencies. It provides current statistics and time trends related to the prevalence of disabilities as well as key indicators on employment, health, community living, and other outcomes of importance in monitoring the well-being of individuals with disabilities. Published by the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) at the University of New Hampshire Institute on Disability, with funding from the U.S. Department of Health and Human Services, Administration for Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
- The Annual Disability Statistics Supplement (307 pg. PDF) is a companion report to the Annual Disability Statistics Compendium. The Supplement presents statistics on the same topics as the Compendium with additional categorizations by demographic characteristics including age, gender and race/ethnicity. Published by the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC) at the University of New Hampshire Institute on Disability, with funding from the U.S. Department of Health and Human Services, Administration for Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).
Diversity and Inclusion
- Diversity & Inclusion Toolkit – Developed by the Association of University Centers on Disabilities to enhance diversity, inclusion, and cultural and linguistic competence in the workforce.
Early Childhood
- 2018 KIDS COUNT Data Book: State Trends in Child Well-Being (72 pg. PDF) – The 2018 KIDS COUNT® Data Book warns that the 2020 census is mired in challenges that could shortchange the official census count by at least 1 million kids younger than age 5. This discrepancy would put hundreds of millions of federal dollars at risk and, in doing so, under fund programs that are critical for family stability and opportunity. The Data Book also looks at trends in child well-being over a period of six or so years — a time that saw continued improvement in economic well-being but mixed results in the areas of health, education and family and community factors.
- 2021 Maine KIDS COUNT Data Book (PDF) – Maine KIDS COUNT, a project of the Maine Children’s Alliance, is part of the national KIDS COUNT® network, a state-by-state effort funded by the Annie E. Casey Foundation (AECF) to track the status of children across the United States. Since 1994, the Maine Children’s Alliance (MCA) has published Maine KIDS COUNT products using the most recent data available on the well-being of children in the areas of physical and emotional health, social and economic status, and education. The Maine KIDS COUNT Data Book, produced every other year, is the comprehensive report of the well-being of children in Maine.
- Growing Ideas Tipsheets and Resources for Guiding Early Childhood Practices – Tipsheets and resources on a variety of topics related to quality inclusive care and education for young children.
- Maine’s Expanding Inclusive Opportunities (MEIO) Early Childhood Settings Inclusion Toolkit – This toolkit supports early childhood programs in providing high quality inclusive settings for young children and their families.
- Universal Design in Pre-K and Early Elementary Classrooms (2014) PDF – When universal design is applied to curriculum, teachers consider the potential barriers inherent in materials and activities, and plan many avenues to learning.
- Visual Supports Learning Links and Checklist (2011) PDF – Free checklist based on a review of current literature, practical knowledge, and reported experiences from early childhood educators.
Education
- Autism Internet Modules (AIM) – A training project developed by national experts in autism spectrum disorders (ASD) that provides free training modules on evidence-based practices for parents, teachers, paraprofessionals and others.
- Literacy by Design: A Universal Design for Learning Approach for Students with Significant Intellectual Disabilities (2012) PDF – This study examined the effect of a technology-based universal design for learning (UDL) approach to literacy instruction, Literacy by Design (LBD), on the reading achievement of 16 students with significant intellectual disabilities in Grades K–2.
- Understanding Accessible Instructional Materials (AIM) and Their Use: Tips for K -12 Educators (2012) (PDF) – Accessible instructional materials reduce barriers and provide rich supports for learning.
Employment
- The Institute Brief: Supporting Individuals with Autism Spectrum Disorders: Quality Employment Practices (2008) PDF – Individuals with autism spectrum disorders (ASD), including those with significant impairment or who have behaviors that others find challenging, can work when they are given appropriate supports.
- Maine Department of Labor, Bureau of Rehabilitation Services, Division of Vocational Rehabilitation – Also known as “VR,” a program that helps people who have disabilities to get and keep a job.
- Maine Medical Center Department of Vocational Services, Benefits Counseling Services – Certified counselors help answer questions about work incentives for individuals receiving SSI or SSDI benefits.
- Social Security: 2016 Red Book – A summary guide to employment supports for persons with disabilities under the Social Security Disability Insurance (SSDI) and the Supplemental Security Income (SSI) Programs.
- The Workplace Mentoring Playbook – A mentoring program is a talent development and retention strategy, one that used an organization’s human resources to improve employee satisfaction, develop leaders and teach new skills. Mentoring is also an effective tool for increasing and shaping an inclusive workplace culture.
Health
- Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine (2014) PDF – A research report that reveals promising positive trends, as well as areas of concern, in healthcare access for children and adults with autism spectrum disorders in Maine.
- Accessing Healthcare: The Experience of Individuals with ASD in Maine Report Summary (2014) [2 pg. PDF] – A two-page summary of the Accessing Healthcare report.
- Evaluation, Diagnosis, and Treatment of Gastrointestinal Disorders in Individuals with ASDs: A Consensus Report ( 2010) – American Academy of Pediatrics report on gastrointestinal disorders common in individuals with ASD. Authors argue that care providers should be aware that problem behavior may often be a symptom of underlying medical conditions including gastrointestinal disorders.
- Evidence-Based Toolkits for Rural Community Health – Rural Health Information Hub (RHIhub): Step-by-step guides to help build effective community health. Resources and examples are drawn from evidence-based and promising programs.
- Health Care For Adults With Intellectual And Developmental Disabilities: Toolkit for Primary Care Providers – Addresses general issues including effective communication, physical health issues, descriptions of specific conditions, and behavioral and mental health issues. The toolkit was developed in Canada and shared online by Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
- Let’s Go! Toolkit for Children with Intellectual and Developmental Disabilities – Let’s Go! works with schools, child care programs, out-of-school programs, and health care practices to increase healthy eating and physical activity opportunities for ALL children.
- Oral Health Fact Sheets for Dental, Medical, Parents and Caregivers of Children with Autism Spectrum Disorder – Fact sheets for 14 mild to moderate manifestations of special needs conditions have been developed for Dental Professionals, Medical Professionals and Parents and Caregivers.
- Questions and Answers on the Model Supported Health Care Decision-Making Agreement Act (2014) (PDF) – The Autistic Self-Advocacy Network developed this model legislation to help advocate for supported health care decision-making arrangements that allow people with disabilities to name a support person to help them make health care decisions.
Housing
- Community Housing of Maine – A nonprofit organization that provides housing for people with disabilities, the homeless, seniors, and other vulnerable populations.
- Maine Coalition for Housing and Quality Services – Over 4000 parents and other advocates form a Coalition to create a system of quality housing and personal supports that is person and family-centered, with choice, dignity, and efficiency.
- Maine State Housing Authority – Rental Assistance – Information for lower-income Maine people in need of subsidized housing or emergency shelters.
- MaineHousing: Maine State Housing Authority – Offers programs and services that make housing more affordable to Maine people. The Housing Choice Voucher Homeownership Program allows Section 8 Housing Choice Vouchers to be used to support home ownership.
Mental Health
- Building An Online Presence: Using Online Media to Promote Community Inclusion (30 pg. PDF) – This toolkit examines how agency programs (or) individuals with mental illnesses can use websites, newsletters, and various social media platforms to connect to mainstream community resources; highlight instances of community participation; and stay active in producing community inclusion-related content on their online media. Produced by Temple University Collaborative on Community Inclusion for Individuals with Psychiatric Disabilities.
- Using Social Media to Enhance Community Participation (31 pg. PDF) – This manual examines ways in which individuals with mental illnesses can use social media networks to enhance community participation. Social media features and functions are examined as well as specific networks such as Facebook, Twitter, Instagram, LinkedIn, MeetUp, and Yelp. Also reviewed are considerations and risks when using social media. Produced by Temple University Collaborative on Community Inclusion for Individuals with Psychiatric Disabilities.
LGBT Aging and Elders
- National Resource Center on LGBT Aging is the country’s first and only technical assistance resource center aimed at improving the quality of services and supports offered to lesbian, gay, bisexual and/or transgender older adults. Established in 2010 through a federal grant from the U.S. Department of Health and Human Services.
- SAGE Maine Social Services Provider Report: Maine’s Social Service Providers Caring for Older LGBT People (March 2017) [PDF] – SAGE Maine conducted this study to gain insight into the level of awareness and preparedness of social service providers regarding LGBT people with particular emphasis on LGBT older adults.
- SAGE Maine Survey Report: Maine’s Health Practitioners Caring for Older GLBT Patients (October 2014) [PDF] – SAGE Maine conducted this study to understand the health care service environment in Maine for older adult gay, lesbian, bisexual and transgender (GLBT) individuals.
Recreation
- Maine Adaptive Sports & Recreation – Organization that promotes year-round education and training for individuals with physical disabilities in order to develop skills and provide enjoyment through active recreation.
Service Animals
- Service Animal Resource Hub – The topic of service animals is complex. The ADA National Network has created this page to help provide some clarity. It is broken up into nine different sections addressing specific issues related to service animals.
Spirituality/Spiritual Supports
- Autism and Faith: A Journey into Community (2011) – Suggestions, personal stories, articles and resources for including individuals with autism in faith communities.
- Inclusion in a Faith Community: Tips and Resources for Congregational Care Committees (2010) (PDF) – Developed by the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
- Inclusion in a Faith Community: Tips and Resources for Religious and Spiritual Leaders (2010) (PDF) – Developed by the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.
- Welcoming People with Developmental Disabilities and Their Families: A Practical Guide for Congregations (2014) (PDF) – guide to equip congregations with ideas and practical steps to strengthen the invitation, supports, and hospitality offered to people with disabilities and their families.
Technology
- Technology Integration and Early Childhood Education – How can technology use benefit the early childhood education field? A collection of handouts, tipsheet, articles and links to resources explore this topic. Organizations and individuals interested in sharing these resources are welcome to link to this Tech Integration and Early Childhood Education (ECE) page.
Transition
- The 2020 Youth Transition Plan: A Federal Interagency Strategy (PDF) – This report was prepared by the Federal Partners in Transition (FPT) Workgroup. This report is reflective of FPT’s multifaceted, cross-systems approach to provide supports and services to youth with disabilities.
- From Adolescence to Adulthood: A Blueprint for Helping Maine’s Youth Succeed. (2018). Policy brief from the John T. Gorman Foundation to improve public understanding of Maine youth and young adults who are economically disadvantaged, homeless or involved with the state’s foster care or juvenile justice systems. Unique obstacles and promising approaches for this underserved group are discussed.
- Increasing Access and Success in the STEM Disciplines: A Model for Supporting the Transition of High School Students with Disabilities into STEM-related Postsecondary Education (2014) PDF – A model for supporting the transition of Maine high school students with disabilities into Science, Technology, Engineering and Mathematics (STEM)-related postsecondary educational opportunities within the University of Maine System.
- Ohio Center for Autism and Low Incidence (OCALI) – OCALI serves families, educators, and professionals working with students with autism and low-incidence disabilities. Website includes Autism Internet Modules, Transition to Adulthood Guidelines and general information on autism and transitioning.
- Outcomes of a Family-Centered Transition Process for Students with Autism Spectrum Disorders (2012) (PDF) – This study assessed the effectiveness of a transition planning approach that empowers students with ASD and their families, educates them about the transition process, and helps them connect with community resources.
- Person-Centered Planning for Transition-Aged Youth with Autism Spectrum Disorders (2014) (PDF) – This study explores strategies and supports used to help transition-aged youth with ASD participate in person-centered transition planning meetings. Implications for the use of this planning process by rehabilitation counselors involved in transition are discussed.
- A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities (62 pg. PDF) – This U.S. DOE Office of Special Education and Rehabilitative Services (OSERS) transition guide helps students and youth with disabilities and their families understand how state and local educational agencies and state vocational rehabilitation agencies collaborate to foster improved outcomes for students and youth with disabilities.
- Transition to Adulthood: A Health Care Guide for Youth and Families (2014) (PDF) – This guide, published by the Autistic Self-Advocacy Network is intended to help young people with disabilities and their families plan for the transition to adulthood in health care contexts.
Updated: 02/07/2023