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Maine Autism Spectrum Resource Center - Research and Resources

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Review of Evidence-Based Practices:

A Review of Evidence-Based Practices For Students with Autism Spectrum Disorders: A Guide for Parents (PDF) by Alan Kurtz. – This guide summarizes some of the findings from a Review of Evidence Based Practices for Students with Autism Spectrum Disorders prepared by the Center for Community Inclusion and Disability Studies in 2008. This Review summarizes the research on the effectiveness of various Comprehensive programs for students with ASD, as well as research on best practices in the following domains: Social development, Communication, Cognition and academic skills, Problem behavior, and Adaptive behavior.

Research:

Autism Center of Excellence at the University of Pittsburgh – The goal of the Center of is to conduct exceptional research on the cognitive, brain and genetic basis of autism. The website provides information on current studies and how to participate. There is also diagnosis information and a list of Center presentations.

Autism Society of America – An extensive site with general autism information and links to Autism Society chapters. Also contains information about research, programs, treatments, training, education, and family issues.

Autism Speaks – Offers a variety of information on autism across the lifespan, policy and advocacy, treatments, research, events and social networks.

Autism Spectrum Disorder Research Publications Analysis Report (PDF) – Under the direction of the Interagency Autism Coordinating Committee (IACC), this inaugural Autism Spectrum Disorder Research Publications Analysis Report describes several key aspects of and trends related to ASD research publications, which can be used to inform planning and strategic funding decisions for future autism research. The IACC is a US Federal advisory committee charged with coordinating all efforts relating to ASD within the US Department of Health and Human Services (HHS).

First Signs – A national non-profit organization dedicated to educating parents and professionals about the early warning signs of autism and related disorders. Provides lists of developmental milestones and red flags, autism research and resources, and information on screening, early intervention, diagnosis, and treatment.

Healing ThresholdsHealing Thresholds was created to connect parents to autism therapy information. Provides information about a variety of common therapies as well as the percentages of parents using these therapies. Also contains sections for recent research and news. The site’s community center has forums, blogs, a wiki, and private messaging capabilities.

Interventions for Adolescents and Young Adults With Autism Spectrum Disorders (PDF) - August 2012 publication by the Agency for Healthcare Research and Quality. The goal of this review is to examine the effects of available interventions on adolescents and young adults with autism spectrum disorders (ASD) focusing on the following outcomes: core symptoms of ASD (impairments in social interaction, communication, and repetitive behavior); medical and mental health comorbidities; functional behaviors and independence; the transition to adulthood; and family outcomes.

The Kessler Foundation/National Organization on Disability 2010 Survey of Americans with Disabilities (PDF) – The Kessler Foundation/National Organization on Disability 2010 Survey of Americans with Disabilities marks the sixth effort over the past 24 years (since 1986) to assess the quality of life of people with disabilities on a wide range of critical dimensions, to measure the differences, or “gaps,” between people with and without disabilities on these indicators, and to track them over time. The National Organization on Disability and Kessler Foundation, working with Harris Interactive, have established a series of 10 measures of significant life activities of Americans with disabilities.

National Institute of Child Health and Human Development (NICHD) – News, autism related health publications, and autism research. NICHD staff presentations and contact information.

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O.A.S.I.S.: Online Asperger Syndrome information and Support – Site contains information and resources on Asperger’s Syndrome. Click ‘Research Projects’ on the left to access a list of research projects currently seeking participants.

OAR: Organization for Autism Research – OAR’s mission is to apply research to the challenges of autism. Their website provides information tailored to family and friends, providers, and professionals. General autism information, research facts, news and events are also included.

Ohio Center for Autism and Low Incidence – Ohio Center for Autism and Low Incidence (OCALI) serves families, educators, and professionals working with students with autism and low-incidence disabilities. Website includes Autism Internet Modules, Transition to Adulthood Guidelines and general information on autism and transitioning.

San Diego Autism Center of Excellence – The center’s mission is to understand how brain structure and function contribute to the health and well-being of all children and to also discover the causes of autism using multi-disciplinary research. The website contains a list of the center’s publications, information about their research topics, general autism info, resources for parents and pediatricians, and a development guide.

UCSB Koegel Autism Center – The major goals of the center are increasing the understanding of autism spectrum disorders, the development and implementation of pivotal response treatments, as well as the improvement of elementary and secondary education efforts for children with autism and other severe disabilities. Lists of training materials for families, lists of books, and publications, as well as, research from the center and major universities.

U.S. Department of Health & Human Services 2010 Interagency Autism Coordinating Committee (IACC) Strategic Plan for Autism Spectrum Research. – The Interagency Autism Coordinating Committee (IACC) is a federal government advisory panel that coordinates autism spectrum disorder research within the U.S. Department of Health and Human Services and across other federal agencies. This second edition of the Strategic Plan was developed by the IACC over the past year with extensive input from families, people with ASD, researchers, clinicians, federal and private funders of ASD research and autism advocacy organizations. The Plan must be updated annually in accordance with the Combating Autism Act (CAA) of 2006. You can download the entire plan as a PDF file using the link provided above.

Waisman Center, Autism-Related Activities – Describes the Waisman Center’s current activities related to autism and provides information on research projects and training for parents and professionals.

Yale Developmental Disabilities Clinic- The Autism Program at Yale is an interdisciplinary group of clinicians and scholars dedicated to providing comprehensive clinical services to children with autism spectrum disorders and their families. Their website offers information on their research, general autism/PDD information, a list of resources and websites, and a list of conferences.

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Books and Articles:

Asperger’s Association of New England – Asperger’s Association of New England offers a comprehensive array of programs and services responsive to the needs of the various sectors of the AS community. Their website lists programs for teen and families, support and social groups, family grants, training, and a variety of articles and resources.

Autism Asperger Publishing Company - An independent publisher specializing in books on autism spectrum disorders based on the latest research on autism, Asperger syndrome and other pervasive developmental disorders.

Autism Society of Maine – Provides a list of support groups and programs available in the state of Maine, lists of both national and Maine resources, and general autism information. Also offers a searchable library.

Autism Spectrum Disorder Foundation – ASDF supports children with an autism spectrum disorder by providing education, information and financial assistance to their families and relevant community service organizations. The website has general information about autism, intervention programs, screenings, and financial information. Also contains lists of books and articles.

Brookes Publishing Co. – Brookes offers a variety of books on the subject of autism.

Educating Children with Autism – Outlines an interdisciplinary approach to education for children with autism. The committee explores what makes education effective for the child with autism and identifies specific characteristics of programs that work. Recommendations are offered for choosing educational content and strategies, introducing interaction with other children, and other key areas.

Indiana Resource Center for Autism – Provides basic autism information and articles on a variety of topics including: autism, family, adults, educational programming, behavior, communication, social/leisure, self help/medical, and sensory. Also offers articles by Temple Grandin.

IOD Bookstore – The IOD Bookstore offers books on a variety of topics related to autism.

Jessica Kingsley Publishing – Jessica Kingsley Publishing is recognized as the leading publisher on autism and Asperger syndrome, they publish in a range of areas including social work, education and arts therapies.

NECTEC: The National Early Childhood Technical Assistance Center – NECTAC serves all 50 states and 10 jurisdictions with an array of services and supports to improve service systems and outcomes for infants, toddlers, and preschool aged children with special needs and their families. Provides searchable database of NECTAC publications.

neurodiversity.com – List of books, articles, and web resources on a variety of topics related to
autism.

O.A.S.I.S.: Online Asperger Syndrome information and Support – Site contains information and resources on Asperger’s Syndrome. Provides lists of online, local, national, and international support groups. Information about education, social skills, adult issues, and research projects are also provided.

Technical Assistance Center on Social Emotional Intervention for Young Children – TACSEI takes the research that shows which practices improve the social-emotional outcomes for young children with, or at risk for, delays or disabilities and creates free products and resources to help decision-makers, caregivers, and service providers apply these best practices in the work they do every day. Contains a variety of resources and presentations, list of training opportunities, and information on positive behavior supports.

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Multimedia:

Autism One Radio – A worldwide, web-based radio station for the care, treatment, and recovery of children with autism started by a small group of parents of children with autism.

Childnett.tv – Offers a series of videos on a wide range of topics related to autism including: services, therapies, lectures, research, and personal stories.

News:

AUCD: Association of University Centers on Disabilities – AUCD is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. This site contains a variety of news stories, events, and resources on the topic of autism.

CCIDS Staff Recommended Books:

Staff Recommendations – List of books recommended by CCIDS staff on a variety of topics. Such as, general autism information, biographies and personal stories, family resources, education, adolescence, employment, adulthood, therapies and treatments, anxiety and stress, social skills, communication, sensory issues, and behavior.


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